Incapacidade e cidade inclusiva

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Como planejar a cidade de uma forma que oferece a todas as pessoas a igualdade no exercício de direitos humanos através do acesso ao espaço, aos serviços, às políticas e à comunidade?

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Como o digital pode favorecer a participação social de pessoas com incapacidade na “cidade da informação”?

Palestra apresentada no dia 15 de agosto de 2018 na Uninorte-Acre (Brasil).

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Para consultar o suporte da palestra: http://urlz.fr/7Abh

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Cidade inclusiva pelas pessoas com incapacidade?

Palestra incapacidade e cidade inclusiva

Como reduzir o isolamento de pessoas com incapacidade e adaptar/melhorar a qualidade de sua participação social por meio do exercício de seus direitos? Como tornar a cidade um espaço inclusivo?

Palestra “Incapacidade e cidade inclusiva” no dia /15/08/2018, de 19h às 21h, no auditório de Bloco E, na Uninorte-Acre.

 

Incapacidade e Cidade inclusiva

 

Falar da cidade inclusiva na Uninorte-Acre (no Brasil dia 15 de agosto de 2018) é uma tentativa de trazer à America do sul (e sobretudo ao Brasil) um debate de cientistas e ativistas que começou em Quebec no Canada em 2016 com o projet “cidade inclusiva” organizado pela Rede Internacional sobre o processo de produçao de incapacidade (RIPPH) e o laboratório CIRRIS na Universidade Laval. O objetivo é pensar em planos e achar soluções inclusivas pela população com incapacidade.

L’accompagnement des personnes ayant des incapacités psychiques en Indonésie : réagencer les traces numériques dans du storytelling et de l’archivage

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Alter 2018 Conference, Lille-France.

Comment rendre le numérique inclusif pour favoriser la pleine participation sociale des personnes ayant des incapacités psychiques ? Quel rôle pourrait-il jouer dans l’accompagnement ? On parle de l’incapacité psychique quand se manifeste chez une personne un dysfonctionnement de la personnalité caractérisé par des perturbations du comportement et de l’adaptation sociale (Zribi, Sarfati, 2008). La désorganisation marque la vie de cette personne quand l’incapacité interfère avec une série de compétences de bases. Les traces produites dans l’environnement numérique de déplacement, de parcours, d’aménagement et d’habitat (Merzeau, 2013), témoignent d’une nouvelle « habitude de vie » : l’éditorialisation. Cette dernière désigne l’ensemble des appareils techniques, des structures et des pratiques qui permettent la production et l’organisation d’un contenu sur le web. Dans une approche méthodologique qualitative, nous interviewons un groupe d’accompagnateurs dans un hôpital psychiatrique à Lawang en Indonésie sur la place du numérique dans la participation sociale. Le recueil de données s’est appuyé sur des entretiens semi-directifs et une observation participante. Le personnel interviewé souligne l’importance d’intégrer le numérique dans des activités d’accompagnement. Ses propositions se focalisent sur l’éducation au numérique, l’accès à l’information, les outils expressifs et les réseaux sociaux numériques. Nous proposons l’archivage numérique comme stratégie à deux objectifs : la réorganisation de la communication vis-à-vis de l’embrouillement du sujet, et l’élaboration du mémoire contre la mémoire « machinique » d’Internet (Merzeau, 2011). L’archivage numérique englobe toute pratique de sélection, d’annotation, de classement, d’indexation dans l’échange et le partage. Pour cette finalité nous suggérons l’usage de deux plateformes : WordPress et Storybird pour la production et le partage de contenus liées aux besoins et intérêts des personnes ayant des incapacités psychiques, à leurs droits et à leur accompagnement. Ainsi, le storytelling bien architecturé, organisé et archivé devient une réponse au désordre informationnel et mémoriel.

Accompanying people with psychiatric disabilities in Indonesia:
Rearranging digital traces in storytelling and archiving

 How can we make digital inclusive to promote a full social participation of people with psychiatric disabilities? What role could it play in accompaniment? Psychiatric disability designates personality dysfunction characterized by behavior and social adjustment perturbations (Zribi, Sarfati, 2008). The person suffers from organizational disruption when disability interferes with a variety of basic skills. In the digital environment, the least activity produces traces. Traces of navigation, of traveling, of planning and of housing (Merzeau, 2013) witness of a new life habit: the editorialization. This process designates all technical devices, structures and practices that allow the production and organization of content on the web (Vitali-Rosati, 2016). In a qualitative methodological approach, we interview a group of accompanists of schizophrenics in a psychiatric hospital in Lawang in Indonesia on the place of digital in social participation. The data collection was based on semi-structured interviews and participant observation. The staff interviewed emphasized the importance of integrating digital into accompaniment activities. His proposals focus on digital education, access to information, expressive tools and digital social networks. We propose digital archiving as a strategy with two objectives: the reorganization of the communication against the disorder of the subject, and the development of the memory against the “auto-memory” of the Internet (Merzeau, 2011). Digital archiving covers all practices of selecting, annotating, ranking and indexing in exchange and sharing. For this purpose we suggest the use of two platforms: WordPress and Storybird for the production and sharing of content related to the needs and interests of people with psychiatric disabilities, their rights and to their accompaniment. Thus, the well-organized and archived storytelling becomes an answer to informational and memorial disorders.

Cette présentation a eu lieu dans la 7ème Conférence annuelle d’Alter à l’Université Catholique à Lille (France) le 05 juillet 2018.

Pour consulter la présentation/To check the presentation : https://drive.google.com/open?id=1bNy1X_OIIePsQhmVkqflbkFYicr99aBC

 

How does the digital environment help organizing the communication for schizophrenics?

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This hypothesis stipulates that building a digital environment through archiving (organizing information structures and developing communicating/sharing strategies) can help the restitution of a schizophrenic’s communication.

This is the work of a group of researchers from the Faculty of Psychology in Widya Mandala Catholic University in Surabaya in Indonesia. It was presented during the 3rd International Congress of Health Communication in Madrid in Spain on 19 October 2017.

To check the PowerPoint presentation:  https://drive.google.com/open?id=0B0pzbHXvgDK8T3VsYnZMMFpFMTg

To check the video presentation on the Youtube channel of AECS Asociación Española de Comunicación Sanitaria:

Confused symbolic interaction of schizophrenics in a psychiatric hospital in Indonesia: Digital culture for an inclusive environment and organized communication

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Surabaya, Indonesia ((Sabá, 2016)

Authors:
Hadi SABA AYON, Erlyn ERAWAN, Michael RAHARDANTO, Jaka SANTOSA SUDAGIJONO.

The social stigma of persons suffering from mental disorders is still prevalent in Indonesia. People are often embarrassed to go to psychologists or psychiatrists due to fear of being labeled as “crazy”. Disorganization characterizes the behavior of schizophrenics. Often, people blame “spirit possession” as the cause of an apparent behavior disturbance. As their personalities and capacities to achieve daily tasks are affected, they become dependent of their assistant environment to achieve their life habits (Fougeyrollas et al., 1998). How could digital environment (Doueihi, 2013) help them restructure their behavior and promote social participation? We interviewed assistants of schizophrenic patients in a psychiatric hospital in Lawang in Indonesia on October of 2016. This survey shed light on the perception from healthcare providers of mental disorders, and their understanding of digital and social participation. The content analysis of the interviews showed that the understanding of the problem of mental disorders is limited to difficulties the patients face in social interaction and communication. Moreover, patients lack the support of the social environment, who could help them overcome their sufferings. As for digital, it boosts the patient’s capacity to communicate and express oneself. On the other hand, it carries the risk of addictions and laziness. We call for a transliteracy for users to enhance their abilities in communication but also in treatment of digital information (to search, to organize, to share). We suggest a digital activity based on creating and developing an inclusive digital environment. This construction passes by producing and editorializing content (Vitali-Rosati, 2016) about their lives, their needs and their rights, then archiving these constructions (Crozat, 2016) in a collaborative memorial project. The aim is to attempt to organize information and communication of schizophrenic user by developing and practicing information and communication strategies to deal with the digital information and its structures.

* This text is a collective contribution born from an international cooperation with Faculty of Psychology in Widya Mandala Catholic University in Surabaya in Indonesia. It was presented in the 3rd International Congress of Health Communication in Madrid (Spain) on October 19th-20th of 2017.

To check the program of the congress: http://www.aecs.es/ICHC2017_programa.pdf

– Dr. Hadi SABA AYON, Ph.D. in information and communication sciences, is an affiliated researcher to Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
Email: s.a.hadi@sabaeu.com
– Erlyn ERAWAN, Psy. D., is a researcher and lecturer in Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
Email: erlynerawan2@gmail.com
– Michael RAHARDANTO, M.A., is a researcher and lecturer in Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
Email: michaelrahardanto@gmail.com
– Jaka SANTOSA SUDAGIJONO, Masters, is psychologist, researcher and lecturer in Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
Email: jaka_s@ukwms.ac.id