This hypothesis stipulates that building a digital environment through archiving (organizing information structures and developing communicating/sharing strategies) can help the restitution of a schizophrenic’s communication.
This is the work of a group of researchers from the Faculty of Psychology in Widya Mandala Catholic University in Surabaya in Indonesia. It was presented during the 3rd International Congress of Health Communication in Madrid in Spain on 19 October 2017.
To check the PowerPoint presentation: https://drive.google.com/open?id=0B0pzbHXvgDK8T3VsYnZMMFpFMTg
To check the video presentation on the Youtube channel of AECS Asociación Española de Comunicación Sanitaria:
Hadi SABA AYON, Erlyn ERAWAN, Michael RAHARDANTO, Jaka SANTOSA SUDAGIJONO.
The social stigma of persons suffering from mental disorders is still prevalent in Indonesia. People are often embarrassed to go to psychologists or psychiatrists due to fear of being labeled as “crazy”. Disorganization characterizes the behavior of schizophrenics. Often, people blame “spirit possession” as the cause of an apparent behavior disturbance. As their personalities and capacities to achieve daily tasks are affected, they become dependent of their assistant environment to achieve their life habits (Fougeyrollas et al., 1998). How could digital environment (Doueihi, 2013) help them restructure their behavior and promote social participation? We interviewed assistants of schizophrenic patients in a psychiatric hospital in Lawang in Indonesia on October of 2016. This survey shed light on the perception from healthcare providers of mental disorders, and their understanding of digital and social participation. The content analysis of the interviews showed that the understanding of the problem of mental disorders is limited to difficulties the patients face in social interaction and communication. Moreover, patients lack the support of the social environment, who could help them overcome their sufferings. As for digital, it boosts the patient’s capacity to communicate and express oneself. On the other hand, it carries the risk of addictions and laziness. We call for a transliteracy for users to enhance their abilities in communication but also in treatment of digital information (to search, to organize, to share). We suggest a digital activity based on creating and developing an inclusive digital environment. This construction passes by producing and editorializing content (Vitali-Rosati, 2016) about their lives, their needs and their rights, then archiving these constructions (Crozat, 2016) in a collaborative memorial project. The aim is to attempt to organize information and communication of schizophrenic user by developing and practicing information and communication strategies to deal with the digital information and its structures.
* This text is a collective contribution born from an international cooperation with Faculty of Psychology in Widya Mandala Catholic University in Surabaya in Indonesia. It was presented in the 3rd International Congress of Health Communication in Madrid (Spain) on October 19th-20th of 2017.
To check the program of the congress: http://www.aecs.es/ICHC2017_programa.pdf
– Dr. Hadi SABA AYON, Ph.D. in information and communication sciences, is an affiliated researcher to Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
– Erlyn ERAWAN, Psy. D., is a researcher and lecturer in Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
– Michael RAHARDANTO, M.A., is a researcher and lecturer in Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
– Jaka SANTOSA SUDAGIJONO, Masters, is psychologist, researcher and lecturer in Faculty of Psychology in Widya Mandala Catholic University Surabaya in Indonesia.
Peut-on comprendre le numérique non pas seulement comme un média mais aussi comme un environnement? Comment les processus de co-construction de cet environnement peuvent-ils changer/évoluer l’accompagnement des personnes ayant des déficiences intellectuelles et des incapacités psychiques? Comment faire du numérique un environnement capacitant et un milieu pour une participation sociale en réseaux?
Ce support de présentation (dans le Congrès d’Airhm à Genève en septembre 2017) discute comment l’archivage dans l’environnement numérique peut améliorer l’accompagnement et la communication de la personne ayant un “double diagnostic” (mental et psychique).
Alter 2017, Lausanne (Switzerland).
La rencontre avec Alter, Société Européenne de Recherche sur le Handicap s’est tenue à Lausanne en Suisse dans le cadre d’une Conférence internationale qu’elle a organisé sur le handicap, la reconnaissance et le “vivre ensemble”.
Cette éditorialisation décrit des moments de la rencontre, des présentations scientifiques et des échanges académiques et humains :
This paper is published in the Proceeding Book “Managing communication in a disruptive era” (p. 73-86), by Atma Jaya Catholic University of Indonesia in Jakarta on April 2017.
It discusses the socio-cultural aspects of uses of geolocation (the case of Facebook Places application), and inspects the “editorial content” of urban space through location-marking services.
Geolocation associates territories and networks, the material and the immaterial, analog and digital. Hybridization of space also requires consideration of the body, of the disembodied identity and of the inter-spatiality. But does the use of these location-based applications consist only of curiosity to know where the other is, or does it make part of the construction of identity in the digital environment? Does publicly disclosing our movements count as an act of showing off, of linking relationships, or is it simply a form of expressing the link between the spatial dimensions of the action?
By exploring and listing all existing places, the “urban explorers” discover, unmask and reveal relationships and places, sometimes hidden to the eyes of all. They move entire parts of a city from Nature to Culture.
How can digital culture insure the social participation of population with disabilities?
Referring to the Human Development Model- Disability Creation Process (Fougeyrollas, 2010), we believe that disability occurs in the interaction between personal and environmental factors. This process affects one’s life habits (INDCP) and subsequently their social participation.
In the digital environment, users develop new social and cultural uses. One new life habit shared by many digital users is the editorialization. According to Bruno Bachimont (2007), the concept of editorialization designates an editorial activity from the indexed fragments of a document. The aim is no longer to find a document but rather to produce new ones using new resources.
Searching for online content and combining fragments of documents to generate substance, is a new way of writing/living in the digital. We believe that a person with disability can achieve an ample part of their network social participation by developing their online presence (Merzeau, 2010) and managing new forms of digital writing.
This general lecture was held in Al-Azhar University Indonesia in Jakarta on November 29th of 2016. To check the presentation: https://drive.google.com/open?id=0B0pzbHXvgDK8ZmZfaXBQdXNsRmc
To watch the interview : https://drive.google.com/open?id=0B-kLciZhjIfXZjBsZG1LVy11Z28